Checking In

With 7 treatments done and only 3 left to go, I thought this might be a good time to evaluate where I am and what’s happening. There is, of course, extreme fatigue from the whole brain radiation. It comes and goes and isn’t constant, so that could be a plus I suppose. Although if it were constant I could at least plan a little better. The headache is no longer – and that’s a relief, not so much because of the lack of pain, but because it means the brain swelling is going down or is gone. I’m down to one steroid pill a day from 4 a day at the start and that is great news.

There is now a rather red area on the back of my neck in line with the 6th cervical spine, which is where the targeted radiation is being focused to deal with the metastatic tumor inside the spinal column. The pressure on the left ulnar nerve must be lessening because I’m able to mostly use my left hand without any problem, except for my fingers stumbling over themselves when I’m typing sometimes. But i’ve noticed that as long as I keep a steady pace and don’t race, I do okay.

I’ve also had somewhat of a dry throat. It’s not sore exactly, just dry and croaky. And the inside of my right cheek and on the gums seems to develop transient sores and bumps. Nothing intolerable to this point, so all I can do is check it out daily to see if it’s better, worse, or the same.

There are a couple of things I find interesting, though. I don’t have much cognitive deficit at the moment; my brain does feel full of cotton balls at times. The worst thing I’ve noticed for the last 2 or 3 days is an intense craving for salt. I’ve always liked salty foods – like my inclination to eat anchovies straight from the jar – but this is so much more intense. I’m trying to pace my salt intake with plenty of fluids but today we ran out of sea salt and I had to resort to cayenne pepper to soothe the craving. This is quite weird. I’m not sure of the mechanism that’s causing the salt craving, but I’ll research as I’m able. And then there’s the “listing to port” when I walk (or is it starboard? whatever, I’m a little lopsided!) That comes and goes, too. Now I know that some of these effects will go away, some won’t, and some might appear that haven’t yet – that’s the nature of whole brain radiation. All I can do right now is compensate as best I can, and stay vigilant to see what comes, what goes, and what stays the same.

Onward and upward.