WBR Progress (?) Report

Today is day 7 after the last radiation treatment, and some new symptoms are appearing, and some other symptoms are continuing. The worst is the painful swallowing. I’m getting tired of soups and pureed food. But I know if I try to swallow real whole food, I will be screaming in a couple of seconds. I’ll just have to be patient.

We met with my PA yesterday (Tuesday). She told me I had ‘sunburn’ inside my ears and nostrils. Which would explain the soreness and itching. So far there is no blistering on my scalp or in my mouth. The back of my neck is quite red, though, with a couple of spots that look like they could turn into blisters. The inside of my mouth doesn’t have any ulcers or sore spots at the moment. She recommended I go back on the Dexamethasone for a few more doses as I was feeling so rotten yesterday. So I had an IV infusion of the Dexamethasone, and it did help. So now I will take 1/2 tablet every other day for three doses, and then I’ll stop.

Today my throat is much more painful. And then I had a bout of nausea and vomiting, which scraped my throat even more raw than it already is. I should have know better and put something more in my stomach before I took the Vicodan. But in my defense, I was desperate for some relief from the pain. I don’t think I’ll do that again! So for now, I’m managing to keep the worst of the pain at bay by using the Lidocaine-Maalox-Benadryl combo the pharmacy mixed up, and the Chloraseptic throat lozenges. Between those two, my throat is eased enough that I can at least swallow without wanting to cry.

I’m not as unsteady as I was, so that’s a plus, and the fatigue has eased up a bit. The skin on my face and neck is extremely dry, and my eyes are drier, too. My vision is a little ‘off’, and I’ve developed some interesting-looking floaters. I’ve had those before, and they’re usually little black spots that soar up and down in my field of vision. But there are a couple that look like little wormy shapes and don’t have a set path but just wander all over. I’m making an effort to remember to put in my eye drops that I was using before. My contact lenses aren’t working as well as they were, so I’ll just have to wait that out and see what happens. I think the chemo changed my vision a little, and the radiation has changed it some more. I’m not due for an eye check until April or May, so maybe by then, my eyes will have settled a bit.

Then there’s the roaring in my ears. It’s not ringing, but sometimes a high-pitched whistle that sounds like a whistling kettle, and sometimes a roaring sound as if there’s a waterfall rushing along in the next room. My hearing seems to be as acute as it ever was, so I’m not worried about that too much right now.

My left hand is almost back to normal, as best I can tell. There is still some weakness on that side according to my PA. I’m encouraged that my hand is better, because it means the tumor is no longer pressing on the ulnar nerve. And by extrapolation, I’m guessing that the brain tumors are shrinking, too.

I’m scheduled for a PET scan in 2 weeks, and then an MRI of the brain 3 weeks after that. And then we’ll re-evaluate to see where we are and how to get to where we need to be.

Onward and Upward.

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Some good news

The MRI went well today with the IV sedation. No panicking at all, just a little antsy from not being able to move for 45 minutes. The meeting with the doctor went well, too. The MRI showed a ‘normal’ brain (as if anything about me is ‘normal’! LOL) and the PET scan shows only tumors in lungs and liver – nothing in bones, lymph nodes, or anywhere else. We are both feeling quite relieved, to say the least.

The doc also prescribed a new cough medicine – the dry hacking has been horrible and keeps my awake at night and the inhaler wasn’t working quite as well.

I am feeling more optimistic at the moment. Not knowing how extensive the metastasis is has been a major source of anxiety for both of us. Tomorrow I’ll have the biopsy but won’t know the results until we meet with the doc again late on Monday afternoon.

The MRI was at Oro Valley Hospital; neither of us have been there before but were both quite impressed with everyone we met. The architecture inside the building is beautiful and there are niches containing artwork throughout the main areas. Very impressive. The only fly in the ointment today was the sticker shock when I learned the insurance wouldn’t pay for this test because I still have to meet my deductible, which is pretty high. Fortunately, paying that bill won’t break us.

So onward and upward, dear friends!!