Back to Maintenance

The CT scan I had yesterday shows my tumors are stable with little change from the last scan. We’re quite relieved! The plan now is to try Avastin only but at a slightly higher dose every 3 weeks. I’m happy to no longer have to take Dexamethosone, but I will have to take blood pressure medication (Lisinopril). It’s a trade off, but I’ll take it.

My onc doc and PA want to see how this works before doing molecular testing, which will require another biopsy. And I’m happy to go along with that. The last biopsy caused nausea and vomiting from whatever the drugs were they gave me, so I’m not anxious to repeat that experience. And the four hours of enforced inactivity before they’d let me go home wasn’t easy for me. I wanted to be up and out of there!

So once again onward and upward.

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Status

I seem to be doing okay on the maintenance chemo with Pemetrexed. I’m having some annoying GI symptoms, but not even close to what I’ve had before. I’m happy that my CEA level went down, and my hair is growing back. I even have eyelashes, short and stubby though they may be. And pretty soon, I’ll be back to having to shave my legs.

I’m getting impatient for my hair to hurry up and grow already. It’s still so short I can’t even tell if it’s straight, curly, or wavy. And it’s white with some darker strands here and there. But I’m just going to have to wait.

I’m still careful about what I’m in contact with until I’m sure my immune system is up to snuff. And I’m chomping at the bit to get to the gym for water aerobics, or some other gentle activity that will help lose some of what I’m calling my blimpie weight. Part of it is steroids, part of it is chemo, and part of it is inactivity as I’ve had no energy to do anything. But my energy is coming back, and I’m able to do a lot more. I have 3 rose bushes to care for now (a birthday present from my partner) and I’m enjoying being outside in the gorgeous Spring weather we’ve been having since Christmas. The heat of summer will be here soon enough, so I’m going to enjoy this as much as I can.

I know I’m not cured; I know my cancer is still there; and I know it could grow and spread again at any time. But for now, I’m planning to live a ‘normal’ life, whatever that may be. I’m not going to live as if I’m dying. I want to do the things we planned we would do when I retired. And I’m going to enjoy my life every day.

The Waiting Game

I have had no side effects from the Pemetrexed maintenance dose I received 3 weeks ago. That’s the good news. I don’t know if it’s working yet, but I am scheduled for a second dose on Tuesday after routine blood work. I’ve been feeling almost normal and have more energy and stamina than I have had since I first started chemo at the beginning of November. I’m hoping that the maintenance will keep my cancer in check for quite a while so we can enjoy our retirement. My hair is growing back – at least on my head. I don’t see any signs of eylashes or eyebrows growing yet; maybe it will just take a while.

We have been able to go on what I call photo safaris each week, and we’re running out of new places to go. Daytrips are all we can handle at the moment, and besides, neither of the dogs likes going anywhere; they are serious home bodies. Who would keep the elephants away if they weren’t here?

So now it’s just a matter of waiting again. But I am feeling much more optimistic, even though my last CEA level showed a slight increase. It went up less than a whole point, but that was before the maintenance began. So now I’m anxious to see where it is. I’m just going to have to be patient! Not an easy task these days.