Today’s visit to Oncology went sort of smoothly. My PA was concerned about side effects and the extended duration of them, but we agreed that the severity may have increased because last week was an Avastin week (I get it every 2 weeks in addition to the Carbo and Taxol) and that may have made the side effects worse. The plan is to see what happens this week without the Avastin and to call in if there is worsening or additional severe side effects. I’ve given up searching to see how many people have the same side effects because the percentage is usually extremely low. ::SIGH:: It isn’t always fun being an outlier.
So what were the side effects this time you ask? Okay, I’m putting them all in this paragraph so you can skip it if you’re tired of my litany of woe. I had talked before about feeling as if all my neurons are firing randomly. Well this time was more like stabbing pains all over. They didn’t last long, but as soon as one area stopped another started. And the soles of my feet hurt when I walked – but only if I was wearing shoes. Walking barefoot made it more bearable. My left ankle hurt – but only the left one – and my right leg felt tight. You know that feeling when your skins dries and you forgot to put lotion? Yeah, that. So the ankle and leg issues might not be side effects but something else. But having them kick in with the side effects wasn’t fun. Normally the side effects are gone after two days, but these lingered through Thursday, Friday, Saturday, and at least half of Sunday. Yesterday (Monday) was the first positive energy day since last Wednesday. Okay – done.
My port is still acting up. No amount of repositioning my body or contorting my arms and head or almost standing on my head got any blood return. My PA told the nurses to give me the option of having the flush done again or just do the infusion as usual. As soon as the nurse called the lab to come draw blood, she was able to get a flash of blood but that was it. So I was quite comfortable in having the infusion without the Drano stuff. And everything was fine. The blood draw was smooth – no problem hitting the vein on the first try. And my blood counts were good. I won’t have the CEA results for a couple of days, but it has been trending downward, just not as fast as I would like. But I’ll take the decrease!
I’m tired of finding hair everywhere, so my friend is going to shave my head again. There’s no point in trying to grow it back until I’m done with the Taxol. Hoo boy. It still depresses me that my hair is falling out. I know it will eventually grow back, and I know there are advantages to having no hair, but still…
So I guess things are okay. Except for the side effects lasting just over 3 days, and the severity of the stabbing pains, and losing my hair, and okay, no more whining.